[community] How can we help?

Wed Mar 18 22:41:21 UTC 2020

Hi guys, this is awesome! I can't think of anything else I can add, but I
really appreciate Cybele and all you guys working on this. I'm blind as
well as physically disabled, and I've had a lot of trouble getting certain
supplies, especially sanitizing wipes. Because some people have overstocked
on those items, there's none for other people who really need them. I don't
have a support network, so I keep going back to Amazon in hopes of finding
disinfecting wipes. I was lucky enough to actually find some and purchase
them, although I don't know when they'll arrive. Anyway, all your ideas
sound awesome to me. Thanks, and take care.

Maria Carmen C. Cruz

On Wed, Mar 18, 2020 at 6:05 PM Laura Bulk <laurabulk at gmail.com> wrote:

> Thanks Julia for that. Yes! It is absolutely vital for our well being that
> we continue engaging in meaningful occupations (activities) and have a
> healthy routine. Resources around this particularly for folks who are not
> able to work at home and to reach folks who aren’t accessing digital
> resources of any kind.
>
> And, policy and support for folks who are losing wages because they are
> immune compromised and therefor cannot go to work.
>
>  Laura Yvonne Bulk OT, MOT, BSW
> PhD Candidate, Rehabilitation Sciences
> Twitter: @LYBOT
> Webpage: Laura Yvonne Bulk on UBC Graduate Studies
> xʷməθkʷəy̓əm (Musqueam) Territory
> Faculty of Medicine | The University of British Columbia
> T325 – 2211 Wesbrook Mall | Vancouver, BC Canada V6T 2B5
> Mobile: 778.228.4774
> LauraBulk at gmail.com
>
>
> > On Mar 18, 2020, at 12:28, Foster, Julia <Julia.Foster at kingstonhsc.ca>
> wrote:
> >
> > Re: policy and programming ideas:
> >
> > In the healthcare system on a regular day (i.e., pre-COVID-19), system
> navigators are popping up in different programs to support people in
> connecting to the resources they need to connect or getting through the
> complicated journey of the healthcare system. Also, coaching is an area of
> interest in healthcare.
> >
> > I just did a great online workshop on a model that looks at the
> importance of activity patterns for health and wellness. It looks the range
> of experiences we get from our activities and the nature and how we
> organize our activities, social and personal factors, and how all of this
> influences our health and well-being. A more holistic look at health
> promotion (i.e., not just eating well and not smoking).  Do Live Well:
> http://dolivewell.ca/
> >
> > I think it would be great if there were interactive resources
> individuals could watch, listen to, or complete, and/or places people could
> call or connect with online where they could reach someone who could coach
> them through identifying personalized solutions for themselves to find ways
> to stay engaged and structure their daily lives to get what they need to be
> healthy (beyond the typical eat well, get exercise, etc.).
> >
> > Thanks and have a good day,
> > Julia
> > Julia Foster, MScOT, OT Reg. (Ont.)
> > Occupational Therapist
> > KHSC Vision Rehabilitation Clinic, in support of the
> > South East Ontario Vision Rehabilitation Service (SOVRS)
> > Department of Ophthalmology
> > Kingston Health Sciences Centre-Hotel Dieu Site
> <https://www.google.com/maps/search/Health+Sciences+Centre-Hotel+Dieu+Site?entry=gmail&source=g>
> > 166 Brock Street, Kingston, ON K7L 5G2
> > Telephone:  613-544-3400 ext. 2475
> > Fax: 613-887-2081
> > Email: Julia.foster at kingstonhsc.ca
> > Confidentiality Notice:  This e-mail message is intended only for the
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> have received this message in error, or are not the named recipient(s),
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> message. Thank you for your co-operation.
> >
> > -----Original Message-----
> > From: community [mailto:community-bounces at lists.idrc.ocadu.ca] On
> Behalf Of pina.dintino at gmail.com
> > Sent: March-18-20 3:03 PM
> > To: 'Cybele S'; 'Jutta Treviranus'
> > Cc: 'Inclusive Design Community'
> > Subject: Re: [community] How can we help?
> >
> > CAUTION:  This email was sent from a user outside of KHSC.  The KHSC
> Help Desk will never ask you to share or verify your user name and
> password. If you suspect this is a phishing or fraudulent email, please
> forward it to KHSC Help Desk at KHSC.HelpDesk at kingstonhsc.ca
> >
> > Here is one for you, create a program specific to children on the
> autismspectrum and provide some level of respite for parents who have the
> children
> > 24 hours. In these particular cases, frequently  children go to school
> or therapy, but given everything is closed, there is no respite for those
> parents dealing with difficult situations.
> > Imagine a single parent with a child with severe autism . Where do they
> get help?
> > The government increased financial support  through the child credit,
> but again what about for children who are on the spectrum. Parents will
> need to see how they can hire external resources to help antieducational
> and awareness campaigns on TV, radio and other channels needs to be more
> relatable and in different languages with diverse demographics so people
> can better relate to this situation.**There was a report yesterday on how
> difficult it was in Italy for example, a nation where hugging, kissing and
> touching is so normal. So how and why  the change in  interaction "social
> distancing" is needed and not offensive It is about loving each other.
> >
> > Pina
> >
> >
> >
> > -----Original Message-----
> > From: community <community-bounces at lists.idrc.ocadu.ca> On Behalf Of
> Cybele S
> > Sent: March 18, 2020 2:48 PM
> > To: Jutta Treviranus <jtreviranus at ocadu.ca>
> > Cc: Inclusive Design Community <community at lists.idrc.ocadu.ca>
> > Subject: Re: [community] How can we help?
> >
> > Hello Inclusive Design Community.  Jutta asked how we could help.  I
> offered to start working with whoever else is interested on a list of
> policy ideas that could be fed to levels of government, to better meet the
> needs of those who are especially vulnerable at this time.
> >
> > In the spirit of this, I have started a list, which I would appreciate
> commentary on - what works and what doesn't, what else should be
> considered, and any additional resources you have to share.  This is a very
> early brainstorm list, just to get us started.  While I appreciate
> feedback, Ihope and trust that we can remain constructive about this.  All
> ideas are worth considering.  So please share whatever comes to mind, if
> you have some thoughts on how we might move this forward.
> >
> > Thanks.
> >
> > Some policy suggestions that I've been thinking about:
> >
> > For Testing:
> >
> > 1 - More tests - for people who haven't travelled and don't know
> someonediagnosed with it, especially for those who are vulnerable (seniors,
> pre-existing conditions)
> >
> > 2 - Rectal swabs should be considered, as the virus stays in stool
> longer than oral secretions, and could give us a better sense of how long
> to isolate. It sounds gross, but they are actually less invasive, and
> possible to use with children. (rectal swabs are already currently used for
> C. diff and other super bugs, and are on the list of acceptable swabs to
> use by the WHO for COVID-19)
> >
> > 3 - Developing a test for antibodies, to know who has developed immunity.
> > If people know they've acquired it and can't catch it again, they will
> be more free to support others. They will still need to handwash, etc., but
> at least they won't be carrying it inside their bodies.
> >
> > 4 - Create a mobile testing service as well as drive-through testing
> services. Because rectal swabs may be better, don't trust the results of a
> single drive-through test (can be false negative). The drive-through is
> also an education point.
> >
> > For Parents, Families and Other in Need:
> >
> > 1 - More resources for parents - food options for those who don't have
> enough, dietician advice, ways to keep your kids busy, online educational
> resources, and access to mental health supports online for children and
> parents. Also emergency supports in the case of child abuse and
> domesticviolence, including shelters and temporary removals.
> >
> > 2 - Coordinating with grocery stores to make sure that no food is wasted.
> > That all the extra food is shared directly with food banks and that
> foodbanks have a way to quickly disperse that food to those in need, and
> that those in need know where to get access to it.
> >
> > 3 - Creating new ways for those without the tools to access supports
> online to get it. Could be print-outs, could be mobile vehicles, could be
> phonecalls from lists that organizations have. Everyone deserves a call or
> a pamphlet in their mailbox.
> >
> > For Social Distancing:
> >
> > 1 - Suggesting no gatherings over 10 people, and better not to gather
> atall.
> >
> > 2 - Putting hand sanitizer stations EVERYWHERE. Also encouraging the use
> of masks by sick people, even while home, so they don't infect their
> families.
> >
> > 3 - Working with other provinces to reduce inter-provincial travel. But
> also coordinating with other provinces so that patients who need help can
> be moved across borders if needed. Same within different communities.
> Maybeclean communities should be places for patients who have tested
> negative and need support, while the already infected places take the
> infected people.
> >
> > 4 - Being super clear about what self-isolation means. Travellers should
> not be going outside to get groceries.
> >
> > 5 - All homeless shelters should practice social distancing NOW, with
> hand sanitizers and masks available for anyone who is sick. Anyone with
> cold symptoms should be quarantined in a separate facility. University and
> college residences should be converted into temporary shelters for
> thosewithout housing, with appropriate quarantine facilities.
> >
> > 6 - Ensure grocery stores and pharmacies are creating social
> distancing.Only 10-50 people in the store at once, 2 metres apart (or 6
> feet, the length of a tall person), and that there is hand santizer
> everywhere andthat there are signs telling sick people to go home with
> pamphlets on how to order food for delivery.
> >
> > For Health Supports:
> >
> > 1 - Creating more mental health supports, and expanding the mental
> health capacities of current mental health providers, to do their work
> online and by phone. That means that all mental health agencies should get
> supports to do this, as well as mental health hospitals.
> >
> > 2 - Telehealth needs way more resources. Include pharmacists on the
> lines too. It should be nurses, nurse practicioners, pharmacists,
> dieticians, and mental health professionals. Expand telehealth to cover a
> wider range ofservices.
> >
> > 3 - Provide proper protective equipment for all waste management
> workers, as well as all health care professionals, including full
> protective gear for companies like Medvisit, which visit seniors.
> >
> > 4 - Change the rules for Medvisit so that they can visit people who are
> vulnerable to this virus and not just seniors and housebound
> >
> > Other?
> >
> >> On Mon, Mar 16, 2020 at 11:29 AM Cybele S <cybele.sack at gmail.com>
> wrote:
> >> Sorry rewritten below with typo correction.  Was typed on my phone.
> >>
> >>> On Mon, Mar 16, 2020 at 11:28 AM Cybele S <cybele.sack at gmail.com>
> wrote:
> >>>
> >>> How can we put together a list of things the various levels of
> >>> government should be doing to support people with disabilities,
> >>> especially those with chronic conditions (including mental health),
> >>> seniors and those living in poverty, at this time?
> >>>
> >>> A very clear bulleted list would help.
> >>>
> >>> And once that list is ready, some design for it would be good too.
> >>>
> >>> Also some signs and memes that communicate these needs that can be
> >>> shared to encourage people to think more inclusively at a time when
> >>> ableism is heightened.
> >>>
> >>> I am happy to help with this, from a content perspective.
> >>>
> >>> Best wishes and stay safe.
> >>>
> >>>
> >>> On Mon, Mar 16, 2020 at 11:20 AM Jutta Treviranus
> >>> <jtreviranus at ocadu.ca>
> >>> wrote:
> >>>
> >>>> Please feel free to use this list to reach out to the Inclusive
> >>>> Design community for help, advice or simply to connect during this
> >>>> period of social distancing. Social distancing only means physical
> >>>> distancing, use whatever you can to maintain social cohesion and
> >>>> social connection especially to people who may feel socially isolated.
> >>>>
> >>>> take care,
> >>>> Jutta
> >>>>
> >>>>
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> >>>
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-- 

Maria Carmen C. Cruz